HARRISBURG, January 24, 2017 – State Sen. John Blake (D-Lackawanna/Luzerne/Monroe) today announced that his Senate Resolution designating the week of February 26 through March 4, 2017 as “Spinal CSF Leak Awareness Week” in Pennsylvania was unanimously adopted by the Senate.
Spinal cerebrospinal fluid (CSF) leak, also known as intracranial hypotension, is a significant, disabling and underdiagnosed but treatable cause of new-onset headache.
“It is imperative that we continue to raise awareness and understanding of spinal CSF leak to ensure the proper diagnosis, treatment and best possible outcomes for all patients,” Blake said. “Raising awareness and finding more successful treatment options for this particular disease is especially important to me as I have two members of my Senate staff whose family members suffer from spinal CSF leaks.”
Blake noted that the most common symptom of the disease is a disabling positional headache that is worse when upright and only improved when lying down – which makes the disease very disabling due to limited ability to be functional while upright. Spinal CSF leaks may also cause a wide range of other symptoms and rarely, more serious complications, such as stroke, dementia, Parkinsonism, coma and even death.
Blake’s resolution would mark the first ever #LeakWeek in Pennsylvania, which coincides with the international Rare Disease Day. Rare Disease Day takes place on the last day of February each year. The main objective of Rare Disease Day is to raise awareness about rare diseases and their impact on patients’ lives.
One of the founders of the Spinal CSF Leak Foundation, a health advocacy nonprofit organization, is a Pennsylvania physician who is also affected by the condition. For more information about the symptoms, diagnosis and treatment of spinal CSF leaks, visit www.spinalcsfleak.org
To read a copy of Blake’s Senate Resolution 13 designating the week of February 26 through March 4, 2017 as “Spinal CSF Leak Awareness Week” in Pennsylvania, click here.
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